Friday, October 15, 2010

What if?

One of those questions or perhaps its more a fear is what if after the results from the geneticist that we find out A (and in turn our family) does not have a LHON mutation? 

Its scary to be concerned your 6 year old may live life legally blind but the prospect of still not knowing whats going on is almost worse then having it be LHON for sure.  

Something serious is going on with A. Thats a fact. 

2 comments:

Melanie said...

Hello Penny & Chris,
You are doing an awesome job with the blog. I just wanted to let you know that I am keeping you all in prayer. I can't imagine the toll it is taking on you guys. Please give A & S hugs from us.
Praying,
Mel.

eletourn said...

Penny, I'm so sorry you guys have to deal with this. We NEVER, EVER want our kids to have to deal with issues like this. You're doing a fantastic job of advocating for her. Sending HUGE HUGS. I can't imagine there's anything I can do to help, but please let me know if you think of anything. At the very least, know that we are thinking about you and A and praying for her.