Saturday, October 16, 2010

The Next Steps

I decided tonight that I am going to be calling Monday morning to get A an appointment at the Massachusetts Eye and Ear Infirmary with hopefully Dr Simmons Lessell or Dr Joe Rizzo.  I was told they both have experience with LHON.

I also wanted to take this time to say..
Lissa Poincenot is perhaps one of the most dedicated mother's I have ever come across. She has been amazing in her support to me directly since she first reached out to me a week ago.  I think she may have declared war on LHON. She is a true force of nature.  The site was made by her. Check out her amazing son  Jeremy (

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