Finding my way out of the maze.

Me with my hero Abby.

The last few months have gone by so quickly.  I feel like I have been running around trying to find out information and I got lost some where from underneath it all. I am hungry for information about Abby condition, about other children who have visual impairments, about other children learning braille, navigating the special education services, looking for related organizations, and information about programs and services out there that can be of help to us.  

I have found so many great things: A community of people who are affected by the same disease, other parents of blind and visually impaired children, organizations that supply free Braille books and becoming part of organizations that are related so Abby and I don't feel so alone in this world. 

Sometimes I feel overwhelmed lost in it all.  I feel like I have missed so much. That I am simply not doing enough. Today almost 5 months from our diagnosis I am still find useful and relevant information. 

I am a parent. Its my job to help Abby navigate through all this so that she has all the tools she needs to be a success.
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I have updated all the articles on the top bar (ie Through Abby's Eyes, Resources....)

Childhood Joy

As I said yesterday. Abby will soon forget "the worst birthday ever".  We finally had her birthday meal out and she had a great time.

Abby isn't a visually impaired child first. She is first a child.  A little adventurous, a little crazy, loving 7 year old child. She still thinks she is princess (and isn't afraid to tell you).   She still fights with her brother. While at times I look at how much of our lives have changed I realized that many things are still the same.

Splash of Water in the Face.

Today we went to Walmart.  Abby was very clingy. Much more then she has been and I found myself getting very frustrated with her. She didn't want to just hold my hand she is 6 and was being a kid but a kid that wanted to hold her mother's hand because she can't see a lot of things.   Then there was a moment when Abby couldn't see me and  I was about 5 feet in front of her.  I felt so bad I didn't think right away what I was suppose to do.

How does one learn to be a mommy to a little girl who could see  a few months ago but doesn't really now?  I feel like a horrible mother.  Isn't it suppose to be instinct. I should know just what to do. We have lived our lives a certain way for year and now I need to get know how to be Abby's mother in a whole different way.

Focus..

Today I had a chance to take a step back from  my new normal while I was away today for a class I had booked weeks ago. I almost didn't go. With all that we have been through the last two weeks the prospect of being away for the day was just jarring. Seemed like too much.


I made a good call.  While Abby was never far from my mind I had a chance to focus on something else.  Since i don't work outside the home I don't have another distraction.  Its been very single focused. 


I am  lucky if I  remember to eat or sleep.  I have been walking around in a daze this week. I don't even remember half of what happened. 


So I should focus on the subjects of both people in this amazing drawing including the tall less cute one. With the big foot feet.